Communication Tip Sheet: Pearls for Your Practice - Rackcdn.com06c10658fa408caf69e1-51495ed3ed32860af1ad9b6ead10833d.r5.cf1.rackcdn.com/...
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MPN Central
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Communication Tip Sheet: Pearls for Your Practice
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Focus not only on objective aspects of the disease, but also the patient’s subjective perspective of his or her symptoms, functioning and performance
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Run through the major manifestations of the disease and the potential effects on the patient’s life
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When addressing life expectancy, frame the discussion with respect to the patient’s treatment
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Structure your conversation about prognosis
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At each visit, touch base on a different particular aspect of the disease and review it with the patient in a sequential manner
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Ask the patient whether you have discussed too much, what they heard you say or whether they have any questions
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Encourage patients to always bring a significant other or friend to the appointment to help them with the information about the disease
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Suggest that patients record the discussion with their phone, which can be helpful for digesting a significant amount of information over time at home
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Suggest patients take notes during their appointments
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Encourage participation in clinical trials
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Refer patients to support groups so that patients can share their experience with peers
Continued
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MPN Central
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Provide an overall information sheet discussing how patients should deal with the Internet in general, guidance on how to vet appropriate websites in terms of resources and a list of highquality websites from the National Institutes of Health to ClinicalTrials.gov
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Provide handouts or other take-home materials and direct patients to online resources such as the MPN Research Foundation
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Encourage patients to be their own advocate and to ask their physicians for materials that they would find helpful if they have not received them
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Involve health care providers such as the nurse practitioner, the physician’s assistant, a social worker or the pharmacist in the patient’s care
ADDITIONAL RESOURCES FOR PATIENTS
• nih.gov • patientpower.info • pvreporter.com • www.mpdinfo.org • www.mpdrc.org
• cancercare.org • clinicaltrials.gov • lls.org • mpnadvocacy.com • mpnforum.com • mpnresearchfoundation.org
FACULTY David H. Henry, MD
Ruben A. Mesa, MD
Brady L. Stein, MD, MHS
Joan Karnell Cancer Center Pennsylvania Hospital University of Pennsylvania Health System Philadelphia, PA
College of Medicine Mayo Clinic Scottsdale, AZ
Northwestern University Feinberg School of Medicine Chicago, IL
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