Planning for a Healthy Transition


Planning for a Healthy Transition - Rackcdn.com5c2cabd466efc6790a0a-6728e7c952118b70f16620a9fc754159.r37.cf1.rackcdn.com/...

1 downloads 324 Views 977KB Size

Planning for a Healthy Transition Health Care Concepts for Youth

February 17, 2017 Tamara Bakewell, Family Involvement Coordinator, Oregon Center for Children and Youth with Special Health Needs

Conflict of Interest Statement • I have had no relevant financial relationships with commercial interests over the last 12 months. • I will present a balanced view of diagnostic or therapeutic options. • This presentation does not contain trade names or promotes specific companies or products. • This presentation does not contain advertising.

2

Today’s Objectives: • Explore concepts in health care transition as they relate to vocation or continuing education •

Learn what a Medical Home is for youth with

special health care needs • Learn resources to promote health and wellness in

young adults who experience special needs

Part 1: Setting the stage: new thinking about health care transition

What families say: “Not looking forward to my child turning 18.”

“How am I supposed to find a doctor who understands my child as well as his pediatrician did?” “It’s easier to keep her going to the pediatrician.”

Turning 18: •

Eighteen year olds are recognized as competent adults by law, and remain so unless found incapacitated by a court of law.



Without the court's determination that an individual is incapacitated, the individual retains all his or her constitutional rights and is responsible for making his or her own decisions. These rights include the rights to decide residence, consent to or reject medical care, sign a contract, marry, and make lifestyle choices. (1)



Guardianship orders should be tailored to meet the actual mental and physical limitations so that the scope of guardianship is the least restrictive possible. (2)

1)

http://www.thearcoregon.org/what-we-do/gaps/about-guardianship

2)

Disability Rights Oregon; Guardianship Handbook, Third Edition

What transitions do we prepare kids for? Babies Diapers to Potty Chair High Chair to Big Table Crib to Bed

Teen Years Bicycle to Car Piggy Bank to Debit Card High school to Work or college

School Age Home to School Walking to Bicycle

Why not prepare them for… • Having an insurance card? • Finding a doctor or dentist? • Getting a counselor? • Advocating for themselves within health care? • Understanding how to pay for a doctor’s appointment? • What to do in an emergency?

Think about…

Think about when you went to the doctor for the first time by yourself without your parents. What brought you there? How did you know where to go? How did you pay for it?

If it ain’t broke, why fix it? Families often report that they are planning to have their child continue to receive care from their pediatrician. What are your thoughts about this? Pros • • • • • •

Cons • • • • • •

Part 2 The business of the health care transition: Who does what?

Transition is a four-way collaboration • Share Voice • Plan • Take Responsibility

• Collaborate • Learn • Prep • Communicate

• Search • Plan • Gather Resources

Young Adult

Family

Adult Provider

Pediatrician • Assist • Plan • Handoff

Family  Check for readiness- yours and theirs!  Launch search for a new provider  Develop transfer plan with pediatrician  Gather resources for new provider  Make a one-page profile for the Medical Home if your child cannot communicate on his own behalf

Pediatrician/current provider  Bring up the subject of transition with you and youth  Assist with readiness checklists  Assist in selection of adult provider  Create a “Transfer package” Health Care Transition Action Plan Portable Medical Summary Emergency Plan Referral Letter for Transfer of Care

 Make the “warm handoff” with letter of introduction.  Consult with new provider for a defined period of time

New Provider  Work with parent and pediatrician during transition planning  Learn about the youth as well as his condition

 Prepare office and medical staff, if necessary, about accommodations, if needed.  Work with parent to establish communication pathways that meet the needs of young adult, provider, and parent. Ensure office staff use them

Most important: Be the “Medical Home”

Coordinated: Help me navigate to get all I need

Every youth deserves a Medical Home that is:

Continuous: Work with me over time

Compassionate: Care about me as a person

Culturally Effective: Speak so I can understand you Accountable: Give me quality care

Comprehensive: I can get all I need when I need it

Accessible Be there when I need you

In Oregon, we call these

www.oregon.gov/oha/pcpch/Pages/recognized-clinics.aspx

And - the Young Adult has a role, too  Begin to take, or continue to build, reasonable responsibility for own health care, no matter how small.

Think of a young person you work with. (Don’t name them.) What kinds of things can he or she do right now to promote his or her own health?

Part 3 Health and Vocation: What’s the connection? 1) Read scenario in your group. 2) In what ways could a relationship with a Medical Home impact these employment issues? 3) What, if anything, is the employer’s role?

Some transition basics  Carry current insurance card  Know the name of doctor or clinic and what town  Know names of medications and/or diagnoses  Employer has current emergency contact  Carry emergency information (Blood type, allergies, etc)  Know what to do if not feeling well at work or school  Name of someone (Human Resources?) to help with

understanding insurance plan  Your ideas?

And last…

Some Resources

Please note: These resources are not all-inclusive. They are a starting place for families and providers. Inclusion in this presentation does not imply endorsement by the OR F2F HIC, OCCYSHN, OHSU, or our project’s funder, the United States Government.

After the PPACA, these items and more are paid for by insurance policies:

Screenings*

Treatments/Services*

Tobacco, Alcohol Depression Sexually Transmitted Infections Cholesterol Diabetes Type 2

Well-woman visits Diet counseling Obesity screening and counseling Contraception Tobacco Cessation

Why are annual visits to the Medical Home be important for a healthy youth?

*Partial List. Older policies may not provide these protections. Call your health plan for confirmation.

Youth can always find care at: Federally Qualified Health Centers

School Based Health Centers



Available to all residents, regardless of ability to pay



Staffed like local pediatric or family practice clinics



Sliding scale with discounts based on family size, etc.





Preventive services, treatment, dental

Provide prevention and health education such as obesity and tobacco prevention



Mental health services and referrals, including help with bullying and suicide prevention



More than 60 clinics located all over Oregon



30 clinics, over 100 locations in Oregon



Sometimes called Community Health Centers www.findahealthcenter.hrsa.gov

www.osbha.org

Funding Sources Brochure Collection of special needs-related foundations; all with different requirements

855-323-6744 www.oregonfamilytofamily.org

• Webinars/print materials for patients and provider

• Patient assistance programs • Condition Specific Resources – Searchable data base Spend 30 minutes with this site. Lots to bookmark!

– Camps – Family support – Medication information

• Drug Discount Cards • Scholarship information

PLAIN LANGUAGE Visual Cues and Storyboards

http://www.oregon.gov/oha/pcpch/Pages/recog nized-clinics.aspx

Free to download.

Chapters: • “What’s that smell?” • “Bras, Tampons, Pads” • “Boxers or Briefs” • “Nocturnal Emissions” • “Oh please, not here!” • more

Thank You Need more resources? Tamara Bakewell Family Involvement Coordinator [email protected]